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Rare Disease Research Network Webinar 1

Date(s)
March 31, 2025
Location
Online
Time
12:00 - 13:00
Price
Free

Rare Disease Research Network Webinar - De-risking patient's ideas & building collaborative research teams

Do you want to help further patient collaborative research approaches? The Rare Disease Research Network (RDRN) are hosting lunchtime webinars to do just that! πŸ“’

The RDRN is a community-led and built platform designed to facilitate rare disease research beginning with patients ideas. They know best what matters to them and this platform complements other Medical Research Council NIHR (National Institute for Health and Care Research) & LifeArc funded investigator led research initiatives launched recently.

They are now interested to understand more about the motivations (and challenges!)  often faced when trying to conduct patient collaborative research.

In particular, they would love to hear more from people in hashtagpharma, hashtagbiotech and hashtagresearch organisations πŸ”¬πŸ’Š

If you have insights to contribute or want to learn more yourself you can sign up below.

Here’s the link to expression of interest form:
https://lnkd.in/e_bQdMrW

RDRN are hosting three lunchtime webinars exploring:

1) De-risking patient's ideas & building collaborative research teams -> 12-1pm, Monday 31 March 2025

2) Contributing to RDRN resources, training, mentorship -> 12-1pm, Wednesday, 02 April 2025

3) Opportunities & barriers to patient co-applicants on peer-reviewed funding applications -> 12-1pm, Monday, 07 April 2025

Apply to join any or all!

RDRN co-founded by Cambridge Rare Disease Network (CamRARE) Patient Led Research Hub & the hashtagRareDisease community.

Event type
Information Event
Department
Audience
All
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Event Organiser Details
Name AJ McKnight
Email a.j.mcknight@qub.ac.uk
Website https://www.camraredisease.org/rare-disease-research-network_2023/